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Recent updates
Latest newsletter
The August '09 newsletter is now available for downloading (pdf format).
Update on Fynn
Fynn's story has been updated for April 2009.
Update on Mason
Amee has written an update on Mason from 12 to 20 months. Read Mason's Journey.
New story link
New York surgeon gives Texas girl with a rare disorder a new lease on life
New story
We have added a new story of inspiration (taken from the Daily Mail).
Forum
We now have a forum where we can share our experiences and swap advice.
Update on Danny
Danny's mom, Danielle has written a short update on Danny's treatment. Read about it at the end of Danny's Story.
Online membership form
We now have an online membership form for you to use to sign up if you are not already a member.
